Upcoming events

    • 01-Oct-2021
    • 07-Oct-2021
    • Twitter

    CMA Family Twitter Blast 

    October 1 - October 7, 2021

    The Alice Cogswell and Anne Sullivan Macy Act (H.R. 1959 and S. 813) is continuing to gain new Congressional co-sponsors, and we need to keep the momentum going! During the blast, October 1 - 7 we will hold a #CogswellMacyAct Family Twitter Blast and we hope you will participate. 

    You will be contacting your state legislators to thank them, and contacting members who have not yet signed on to encourage them to do so. As constituents, your messages to your Congressional representatives is powerful. We will send you all the tools and information you need. 

    If you have a Twitter account, like @nfadb and the new @CogswellMacyAct Twitter page!

    Look for information leading up to October 1st, and get your thumbs ready!

    1. Find your legislators here

    2. Get their twitter handle here 

    3. Follow @nfadb 

    4. Retweet daily tweets from @nfadb to your legislators during the blast week

    5. Tag @nfadb and hashtag #CogswellMacyAct

    6. Use any of the tools from the tool kit here

    • 07-Oct-2021
    • 18-Nov-2021
    • 6 sessions
    • Zoom
    • 6

    NFADB will partner with other Deaf-Blind family organizations to train family leaders. 

    The Family Advocacy Training & Education (FATE) will train family members who already possess leadership skills to advocate on issues important to the field of deaf-blindness.  The participants will gain skills in advocacy, work together to develop actions and an agenda, and be organized and supported to advocate and educate legislators at the state and national level about the needs of individuals who are Deaf-Blind.

    The family organization representatives will develop a national agenda and then convene in Washington DC for a Day on the Hill in 2022 to utilize the newly honed advocacy skills!

    • 20-Oct-2021
    • 7:00 PM - 8:30 PM
    • Zoom Webinar

      Got Transition Webinar

    NFADB along with our family organizations and partners from the NFADB Affiliate Network, the CHARGE Syndrome Foundation, The Global Foundation for Peroxisomal Disorders (GFPD), Helen Keller National Center (HKNC), Usher Syndrome Coalition, and the National Center on Deaf-blindness (NCDB) invite you to the Got Transition Webinar Event on Wednesday, October 20, 2021, 7:00-8:30pm eastern.

    Got Transition® is the federally funded national resource center on health care transition (HCT). Its aim is to improve the transition from pediatric to adult health care through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers.

Past events

22-Sep-2021 Deaf-Blind Experience
16-Sep-2021 Cogswell-Macy Act: A Family Focus Update
26-Jul-2021 CMA Twitter Blast July 26 - July 30
13-Jul-2021 NFADB Annual General Membership Meeting
24-Jun-2021 Cogswell-Macy Act: A Family Focus Chat featuring Maurice Belote, Robbie Blaha, Tracy Evans-Luiselli, & Cyral Miller
20-May-2021 Cogswell-Macy Act: A Continued Family Focus, featuring Maurice Belote & Tracy Evans-Luiselli
20-Apr-2021 Cogswell-Macy Act: A Family Focus, featuring Robbie Blaha
23-Mar-2021 Recruiting Participants for Doctoral Dissertation Study
01-Mar-2021 Texas Symposium on Deafblind Education
22-Oct-2020 My Family's Journey: Advocacy, Self-Care, and Resiliency
22-Oct-2020 Sponsor 2020 Deaf-Blind Experience
22-Oct-2020 El Viaje de mi Familia: Abogacía, Cuidados Personales y Resilencia
11-Sep-2020 Northeast Regional CHARGE Syndrome VIRTUAL Conference
01-Sep-2020 Family-to-Family Communities Project (F2FC)
26-Aug-2020 ¡Ya esta abierta la inscripción para el curso de autoaprendizaje en línea sobre sordoceguera! (FREE Spanish-Language Online Course Study Registration open now!)
14-Jul-2020 NFADB's Annual General Membership Meeting
10-Jul-2020 12th Annual USH Connections Conference - NOW VIRTUAL
26-Feb-2020 Capitol Hill Advocacy Day Summit
09-Oct-2019 NCDB Hosts: Deaf-Blind Immersion Experience
03-Oct-2019 *New York Deaf-Blind Awareness Experience*
27-Sep-2019 DBMAT 46th Annual Family Conference
25-Sep-2019 MaxiAids WEB-A-THON to benefit NFADB!
17-Sep-2019 CDBS & NFADB: Monthly Spanish Calls
11-Sep-2019 Western Regional Early Intervention Conference
02-Aug-2019 14th International CHARGE Syndrome Conference

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.


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