Life is a succession of lessons which must be lived to be understood.

—Helen Keller

Every family with a child who is deaf-blind has a unique story! Professionals can teach volumes about deaf-blindness, but families experience it day in and day out and are experts when it comes to their child. Learn from the experts! Below you will find links to collections of stories in different formats gathered by NFADB and our partner organization National Center on Deaf-Blindness.

Family Spotlight

These brief stories profile NFADB families. Meet individuals who are deaf-blind of different ages and with different etiologies and learn how their families support them.

Family Journeys

Parents write in their own words about the experiences and emotions that come with raising a child who has multiple disabilities and how their families’ lives have changed.


Families Matter Video Stories

These videos from the National Center on Deaf-Blindness give you an in-depth look into the lives of several families who have children with deaf-blindness.


Every Friday, National Center on Deaf-Blindness does a Facebook/Twitter post highlighting a child with deaf-blindness and their family. Visit this page to view the archive of posts.

Meet Family Leaders

These stories introduce you to parents who have used their leadership skills to make a difference for their own child, to help other families, or to create change within organizations or systems.

Transition and Adult Life Success Stories

These stories highlight best practices related to self-determination, access, and family engagement for transition-age students and adults who are deaf-blind.

More Stories

We’ve collected links to many more family stories from around the web!

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.


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