PROVIDE information and resources

Educated parents know their rights and can be better advocates for their children. 

Family Leadership Training

In 2012 and 2016, NFADB and NCDB offered national symposium for family leaders across the country. As a result of these trainings, NFADB and families across the country are advocating for awareness and funding for the use of interpreters, interveners and SSPs at local, state and national levels.

Transitioning to Adult Health Care

Got Transition has a Health Care Transition Quiz for parents/caregivers to find out how ready their child is to transition to adult care. The quiz asks key questions to help families prepare for changes that happen between ages 18 and 22. The quiz includes tips and linked resources to support parents/caregivers in becoming advocates for their child. The resources include information on how to add medical information to a smartphone, what legal changes occur at age 18, how to sign up for health insurance, and more. #HealthCareTransition https://www.gottransition.org/parents-caregivers/hct-quiz.cfm