NFADB is committed to building a strong national network of families of individuals who are DeafBlind. Our Affiliate Network connects family organizations with NFADB to collaborate, share information, develop family leaders, and strengthen opportunities and services for families.

Together, we:

• Strengthen connections among family organizations nationwide

• Share information, resources, and best practices

• Build partnerships at local, state, and national levels

• Support family leadership and advocacy

• Promote a unified national voice

• Grow and strengthen Affiliate and NFADB membership

Why Become an NFADB Affiliate?

As an NFADB Affiliate, you can:

• Grow your membership and visibility

• Connect and collaborate with other family organizations

• Promote your organization through the national network

• Receive support and guidance for developing your organization

• Participate in NFADB webinars, workgroups, and sponsored initiatives

Who Can Become an Affiliate?

Any family group or association organized and led by families of children or adults who are DeafBlind may become an NFADB Affiliate. Affiliates may be informal groups that meet periodically or formal nonprofit organizations with established bylaws, policies, and procedures. At least 51% of the group’s membership must be family members.

NFADB Affiliate Network application

Questions? Contact Affiliate Coordinator Edgenie Bellah at Edgenie@nfadb.org.

THE NFADB AFFILIATE NETWORK

Arkansas Empowering Families of Deafblindness (AEFDB)

AEFDB seeks to better understand dual sensory impairment and to advocate for the unique needs of each child. We intend to build bridges between families and their communities – educating those communities about deafblindness and to make changes in medical, educational, vocational, and political systems in order for our children to live as independently as possible with a high quality of life for those who are deafblind.

Website:  https://dsiarpc.wixsite.com/aefd

Ava’s Voice       

Ava's Voice is committed to providing opportunities to families to make connections. The purpose of Ava’s Voice is to provide financial assistance to support these opportunities, to advance the understanding of hearing and/or vision loss through funding research, and to provide resources and education to the public about hearing loss, vision loss and deafblindness.

Website: www.avasvoice.org 

Deaf-Blind Multihandicapped Association of Texas  (DBMAT)

DBMAT promotes and improves the quality of life for all Texans who are deafblind multihandicapped by supporting the establishment of educational, rehabilitative, vocational and independent living opportunities for individuals of all ages.

Website: www.dbmat-tx.org

Family Partners for the DeafBlind of Florida and the U.S. Virgin Islands (FPDB-FL/VI)

FPDB-FL/VI is a group of families that meet with the purpose to support, advocate, and facilitate connections among families in Florida and the U.S. Virgin Islands. FPDB-FL/VI believes with appropriate supports, families of individuals with DeafBlindness with the appropriate supports can build leadership skills to help their family member succeed in fulfilling their right to become an active member of society.

Contact them:  flvideafblindfamilies@gmail.com

Illinois Advocates for the Deafblind (IADB)

 IADB is a non-profit organization of parents, families, friends, and professionals dedicated to protecting the rights and advocating for the needs of all individuals with deafblindness.

Visit their Facebook page: https://www.facebook.com/groups/206378499391160/

The New York Parent Association for Deaf-Blind (NYPADB)

 NYPADB advocates for individuals with deafblindness and their families. NYPADB provides opportunities for families to interact, communicate, and share ideas, experiences, information, and resources, as well as facilitates family events (either local or regional), and offers workshops in collaboration with the New York DeafBlind Collaborative. NYPADB sponsors monthly support group conference calls in specific etiologies such as CHARGE Syndrome, and also has a presence through social media (Facebook group) giving families the chance to connect with each other in a confidential platform sharing information, resources, mentoring and everlasting bonds.

Website:  www.nypadb.org

The Pennsylvania Partnership for the Deafblind (PPDB)

PPDB strives to:

• Establish & maintain a network to identify & help connect families with similar needs
• Develop & disseminate accurate, timely information & share resources
• Collaborate with other organizations & groups to ensure that the needs & concerns of persons who are deafblind are addressed
• Educate policymakers on issues involving the deafblind

Website: www.papdb.org

Puerto Rico Deaf-Blind Parents Association

 The Puerto Rico Deaf-Blind Parents’ Association strives for the inclusion of people with deafblindness into our modern society as productive and self-sufficient individuals, within the extent of their particular circumstances.

La integracion de la persona con sordoceguera a nuestra sociedad moderna, como un ser productivo y autosufuciente deja acuerdo a sus circunstancias particulares. 

Texas Chargers

Texas Chargers, Inc. encourages, educates, and enriches individuals and families living with CHARGE syndrome.  Texas Chargers is a group of Texas families, friends and professionals who are dedicated to helping children and young adults who live with CHARGE syndrome.  The primary function of our organization is to support the emotional and educational needs of the people with CHARGE syndrome and the families and professionals working with them, to provide them with a better quality of life.

Website: http://texaschargers.org/