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The National Family Association for Deaf-Blind (NFADB) is the largest national nonprofit organization empowering families with individuals who are Deaf-Blind.

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What is Deaf-Blind?

What does the term "Deaf-Blind" mean?  The answer to this and other questions are here.

What is Deaf-Blind?

What NFADB Believes

NFADB believes that individuals who are deaf-blind are valued members of their communities and should have the same opportunities and choices as others in the community.

Supporting families to ADVOCATE for services

Helping families CONNECT for support

Providing information and training to TEACH families and professionals

nfadb in action

In Memoriam

It is with great sorrow that we share the news that our dear friend and Special Advisor of NFADB, Steve Perreault, passed away. Steve was instrumental in the development of NFADB and a longtime supporter of families with individuals who are deaf-blind. Steve was a kind, caring friend to all and will be dearly missed by our deaf-blind community.

NFADB Call for Nominations for the Steve Perrault Award

The nomination period for The Steve Perreault Award is now open. In 2023 NFADB will honor the contributions of a family member (immediate or extended family member) who has shown outstanding service to an individual (or individuals) who is Deaf-Blind. A complete nomination requires submission of the form (link below), and two letters of nomination. Nominations for this award will close on January 15, 2023. The award will be presented at NFADB's general membership meeting on July 11, 2023.

The Steve Perreault Award

El Premio Steve Perreault


NFADB is very proud to announce Faye Manaster (IL) and Kathy McNulty (NY) as the recipients of the 2021-2022 Steve Perreault Award. Congratulations!!

This year, The Steve Perreault Award recognized professionals who have created a lasting and profound impact on the quality of life for individuals living with deafblindness and their families.

Recipients of the 2021-2022 Steve Perreault Award are the heroes among us

• who live and work with passion and demonstrate outstanding advocacy to benefit families with individuals who are deaf-blind

• who have shown outstanding leadership in the deaf-blind community to make a difference at the local, state and national levels.

This award is given annually in recognition of Steve Perreault who grew up in Massachusetts and began working in the deafblind program at Perkins School for the Blind in 1978. He worked and volunteered in the field of deaf-blindness locally, nationally and internationally for over 40 years.

Steve could make a connection with a child or adult that made you feel like you were the only person with him even in a crowded room. He shared his expertise and years of experience through stories, thoughtful suggestions, and lots of laughter. He was a humble man who cared deeply about others and he brought hope to countless families in the deafblind community. Steve was a talented educator who also championed family advocacy and he helped to found the National Family Association for Deaf-Blind.

Our 2021 - 2022 Steve Perreault Award Winners (Heroes)!

Image includes the NFADB logo hand, the Steve Perreault Award winners for 2021-22 pictures and a quote for each winner.

In 2023 NFADB will announce and honor the contributions of a family member (immediate or extended family member) who has shown outstanding service to an individual(s) who is Deaf-Blind. Coming soon! Nominations open November 2022!

Meet Our Families

Read stories from our community and learn more about our family association.

Family spotlight

The National Family Association for Deaf-Blind (NFADB) is pleased to spotlight Lisa Lopatofsky and family 

State Resources

Find out about specialized resources for Deaf-Blindness in your state.

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OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.


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Our work is supported by organizations and individuals like you.  

Support our work

Donation goal

Goal: $50,000.00
Collected: $34,263.00


Phone: 800.255.0411
Fax: 516.883.9060



PO Box 1667
Sands Point, NY 11050

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