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The National Family Association for DeafBlind (NFADB) is the largest national nonprofit organization empowering families with individuals who are DeafBlind.

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What is DeafBlind?

What does the term "DeafBlind" mean?  The answer to this and other questions are here.

What is DeafBlind?

What NFADB Believes

NFADB believes that individuals who are DeafBlind are valued members of their communities and should have the same opportunities and choices as others in the community.

Supporting families to ADVOCATE for services

Helping families CONNECT for support

Providing information and training to TEACH families and professionals

nfadb in action

Upcoming events

In Memoriam

 Steve was instrumental in the development of NFADB and a longtime supporter of families with individuals who are DeafBlind. Steve was a kind, caring friend to all and will be dearly missed by our DeafBlind community.

NFADB Call for Nominations for the Steve Perreault Award

The nomination period for The Steve Perreault Award will open January 8, 2024. In 2024 NFADB will honor the contributions of a professional (paid or unpaid) who has shown outstanding service to an individual (or individuals) who is DeafBlind. A complete nomination requires submission of 1) the Nomination Form (link below) and 2) two letters of support. Nominations for this award will close on February 29, 2024. The award will be presented at NFADB’s annual general membership meeting on July 8, 2024. 

The Steve Perreault Award

El Premio Steve Perreault


NFADB is very proud to announce Vivecca Hartman (TX) and Sheri Stanger (NY) as the recipients of the 2023 Steve Perreault Award. Congratulations!!

In 2023, The Steve Perreault Award recognized family members who have created a lasting and profound impact on the quality of life for individuals living with deafblindness and their families.

Recipients of the 2023 Steve Perreault Award are the heroes among us

• who live and work with passion and demonstrate outstanding advocacy to benefit families with individuals who are deafblind

• who have shown outstanding leadership in the deafblind community to make a difference at the local, state and national levels.

This award is given annually in recognition of Steve Perreault who grew up in Massachusetts and began working in the deafblind program at Perkins School for the Blind in 1978. He worked and volunteered in the field of deafblindness locally, nationally, and internationally for over 40 years.

Steve could make a connection with a child or adult that made you feel like you were the only person with him even in a crowded room. He shared his expertise and years of experience through stories, thoughtful suggestions, and lots of laughter. He was a humble man who cared deeply about others and he brought hope to countless families in the deafblind community. Steve was a talented educator who also championed family advocacy and he helped to found the National Family Association for DeafBlind.

2023 Steve Perreault Award Winners (Heroes)! 

In 2024 NFADB will announce and honor the contributions of a professional (paid or unpaid) who has shown outstanding service to an individual(s) who is deafblind. Coming soon! Nominations open January 8, 2024!

Meet Our Families

Read stories from our community and learn more about our family association.

Family spotlight

The National Family Association for DeafBlind (NFADB) is pleased to spotlight Lisa Lopatofsky and family 

State Resources

Find out about specialized resources for DeafBlindness in your state.

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OUR MISSION:  NFADB exists to empower the voices of families with individuals who are DeafBlind and advocate for their unique needs.


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Our work is supported by organizations and individuals like you.  

Support our work

Donation goal

Goal: $50,000.00
Collected: $45,271.00


Phone: 800.255.0411
Fax: 516.883.9060



PO Box 1667
Sands Point, NY 11050

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