WE promote partnerships

NFADB has developed collaborative relationships with many state and national organizations focused on deafness, blindness, and deafblindness. Through these relationships, we partner to collaborate on projects, provide referrals and share valuable resources with families!

*listed in alphabetical order

American Association of DeafBlind (AADB)
AADB is a national consumer organization of, by, and for DeafBlind Americans and their supporters. Their mission is to ensure that all deafblind persons achieve their maximum potential through increased independence, productivity, and integration into the community.

CHARGE Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome and to promote awareness and research regarding its identification, cause, and management. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Most have hearing loss, vision loss, and balance problems which delay their development and communication.

Cornelia de Lange Syndrome Foundation (CdLS) 
CdLS is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

DeafBlind National Community of Practice (DB NCOP)
NFADB is a member of the Helen Keller National Center DB NCOP, a collaborative working group of agencies committed to maximizing resources and enhancing services with and for individuals who are deafblind. The DB NCOP looks to strengthen relationships among these agencies and increase opportunities for services and supports available on the local and state level to the deafblind community across the country.

Global Foundation on Peroxisomal Disorders(GFPD)
GFPD helps families of children diagnosed with a Peroxisomal Biogenesis Disorder (in the Zellweger Spectrum of Disorders) by assisting family members and professionals through educational programs, research, and support services.

Hands and Voices

Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. We are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. Our membership includes families who communicate manually and/or orally. From American Sign Language to cochlear implants, our organization represents people from all different approaches to, and experiences with, deafness or hearing loss. We have local chapters comprised mainly of parents along with professionals. 

Helen Keller National Center (HKNC)
The mission of the Helen Keller National Center (HKNC) for DeafBlind Youths and Adults is to enable each person who is deafblind to live, work and thrive in his or her community of choice. The Center operates a residential and training facility in Sands Point, New York.  Staff in 12 regional offices also provide information, training, and support in an individual’s home state.

Intervener Website 

Learn about an Intervener.  An Intervener is a person who:

• Works consistently one-to-one with an individual who is deafblind
• Has training and specialized skills in deafblindness

An intervener provides a bridge to the world for the student who is deafblind. The intervener helps the student gather information, learn concepts and skills, develop communication and language, and establish relationships that lead to greater independence. The intervener is a support person who does with, not for the student. 

National Center on DeafBlindness (NCDB)
NCDB provides technical assistance and information services to agencies serving children and young adults who are deafblind, as well as their families. NCDB has the largest database of information related to deafblindness and disseminates (at no cost) information related to children and youth who are deafblind (ages 0 to 21 years).

National DeafBlind Coalition
The National DeafBlind Coalition fka National Coalition on Deafblindness was formed in 1987 in response to a need to provide feedback to legislators and policy makers regarding the ongoing needs of children who are deafblind and the reauthorization of Individuals with Disabilities Education Act (IDEA). 

National DeafBlind Equipment Distribution Program (NDBEDP)
NDBEDP, through the iCanConnect program, ensures that every person with combined hearing and vision loss has access to modern telecommunication tools and the training necessary to use them, granting every individual the opportunity to interact with the world as an involved, contributing member of society.

Parent to Parent USA (P2P USA)

P2P USA is a national non-profit organization whose mission is to provide emotional and informational support to families of children who have special needs. P2P USA is an alliance of statewide P2P programs, promoting access, quality, and leadership in parent to parent support across the country.

Perkins School for the Blind
Since 1829, Perkins has been a national and international leader and resource providing state-of-the-art education and services to infants, toddlers, children, youth, and young adults who are blind, deafblind or visually impaired, including those with additional disabilities, their families, and the professionals who serve them. Their goal is to maximize the potential of each child to lead a proud, productive, and meaningful life in the mainstream of society in the United States and around the world.

Perkins Wonder Baby

WonderBaby.org is dedicated to helping parents of young children with visual impairments as well as children with multiple disabilities. Here you’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child, as well as links to meaningful resources and ways to connect with other families.

Usher Syndrome Coalition
The Usher Syndrome Coalition is an international organization dedicated to providing information and support to individuals and families living with Usher syndrome. Usher Syndrome is the leading genetic cause of combined vision and hearing loss. The Coalition has the USH Trust – the largest international registry of individuals with Usher syndrome; has access to the latest information from the world’s leading researchers on Usher syndrome; and serves as the bridge between the Usher community and the research community.