NFADB Affiliate Network
Many states have a state family group for families with an individual who is deaf-blind. These groups typically provide information and support to families within that state. Check with your state deaf-blind project to find out if your state has a family group.
Several of these state family groups are also NFADB Affiliates.
Through our affiliate program, we offer assistance to these parent groups in the form of:
Any state parent group or association which is organized and run by families is eligible to become an NFADB affiliate. This can be an group that meets informally a few times a year, or a formal non-profit group with bylaws, policies and procedures. The group membership must be at least 51 percent family members. Download the NFADB Affiliate Network application.
For more information, please contact our Affiliate Coordinator.
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Arkansas Empowering Families of Deafblindness (AEFD)
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Ava’s VoiceAva’s Voice is committed to providing opportunities to families to make connections. The purpose of Ava’s Voice is to provide financial assistance to support these opportunities, to advance the understanding of hearing and/or vision loss through funding research, and to provide resources and education to the public about hearing loss, vision loss and deaf-blindness. Visit Ava’s Voice website: www.avasvoice.org |
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Deaf-Blind Multihandicapped Association of Texas (DBMAT)DBMAT promotes and improves the quality of life for all Texans who are deaf-blind multihandicapped by supporting the establishment of educational, rehabilitative, vocational and independent living opportunities for individuals of all ages. Visit the Deaf-Blind Multihandicapped Association of Texas website: https://www.dbmat-tx.org/ |
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Illinois Advocates for the Deafblind (IADB)The Illinois Advocates for the Deafblind is a non-profit organization of parents, families, friends, and professionals dedicated to protecting the rights and advocating for the needs of all individuals with deafblindness. Visit the Illinois Advocates for the Deafblind Facebook page: https://www.facebook.com/groups/206378499391160/ |
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Michigan Association for DeafBlindThe Michigan Association for DeafBlind provides support, training, and information to empower families so they may better support their children who are DeafBlind. |
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The New York Parent Association for Deaf-BlindThe New York Parent Association for Deaf-Blind (NYPADB) advocates for individuals with deaf-blindness and their families. NYPADB provides opportunities for families to interact, communicate, and share ideas, experiences, information, and resources, as well as facilitates family events (either local or regional), and offers workshops in collaboration with the New York Deaf-Blind Collaborative. NYPADB sponsors monthly support group conference calls in specific etiologies such as CHARGE Syndrome, and also has a presence through social media (Facebook group) giving families the chance to connect with each other in a confidential platform sharing information, resources, mentoring and everlasting bonds. Visit the New York Parent Association for the Deaf-Blind website: https://www.nypadb.org/ |
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The Pennsylvania Partnership for the DeafblindThe Pennsylvania Partnership for the Deafblind strives to:
Visit the Pennsylvania Partnership for the Deafblind website: www.papdb.org |
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Puerto Rico Deaf-Blind Parents AssociationThe Puerto Rico Deaf-Blind Parents’ Association strives for the inclusion of people with deafblindness into our modern society as productive and self-sufficient individuals, within the extent of their particular circumstances. La integracion de la persona con sordoceguera a nuestra sociedad moderna, como un ser productivo y autosufuciente deja acuerdo a sus circunstancias particulares. Visit the Puerto Rico Deaf-Blind Parents Association website: https://www.facebook.com/pages/Asociacion-Nacional-de-Familias-de-SordoCiegos-de-Puerto-Rico/237836345617 |
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Texas ChargersTexas Chargers, Inc. encourages, educates, and enriches individuals and families living with CHARGE syndrome. Texas Chargers is a group of Texas families, friends and professionals who are dedicated to helping children and young adults who live with CHARGE syndrome. The primary function of our organization is to support the emotional and educational needs of the people with CHARGE syndrome and the families and professionals working with them, to provide them with a better quality of life. Visit Texas Chargers at https://texaschargers.org/ |
