Many states have a state family group for families with an individual who is deaf-blind. These groups typically provide information and support to families within that state. Check with your state deaf-blind project to find out if your state has a family group.
Five of these state family groups are also NFADB State Affiliates.
Through our affiliate program, we offer assistance to these parent groups in the form of:
Any state parent group or association which is organized and run by families is eligible to become an NFADB affiliate. This can be an group that meets informally a few times a year, or a formal non-profit group with bylaws, policies and procedures. The group membership must be at least 51 percent family members.
For more information, please contact our Affiliate Coordinator.
The New York Parent Association for Deaf-Blind
The New York Parent Association for Deaf-Blind (NYPADB) advocates forindividuals with deaf-blindness and their families by sharing resources, information and experiences.
Contact Barbara Loughran, President Phone: (516) 621-2934 Email Barbara
The Pennsylvania Partnership for the Deafblind
The Pennsylvania Partnership for the Deafblind strives to:
Contact Susan Shaffer, President Phone: (717) 776-4061 Email Susan
Puerto Rico Deaf-Blind Parents Association
The Puerto Rico Deaf-Blind Parents’ Association strives for the inclusion of people with deafblindness into our modern society as productive and self-sufficient individuals, within the extent of their particular circumstances.La integracion de la persona con sordoceguera a nuestra sociedad moderna, como un ser productivo y autosufuciente deja acuerdo a sus circunstancias particulares.
Contact Monica I Quesada, President Phone: 787-385-9419 Email Monica
Deaf-Blind Multihandicapped Association of Texas – DBMAT
DBMAT promotes and improves the quality of life for all Texans who are deaf-blind multihandicapped by supporting the establishment of educational, rehabilitative, vocational and independent living opportunities for individuals of all ages.
Contact Melanie Knapp, President Phone: (281) 302-5454 Email Melanie
Illinois Advocates for the Deafblind (IADB)
The Illinois Advocates for the Deafblind is a non-profit organization of parents, families, friends, and professionals dedicated to protecting the rights and advocating for the needs of all individuals with deafblindness.
Would you like to connect with a parent of a child who is deaf-blind or speak with one of our NFADB board members? Click here
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