NFADB has developed collaborative relationships with many state and national organizations focused on deafness, blindness and deaf-blindness. Through these relationships we partner to collaborate on projects, provide referrals and share valuable resources with families. Thank you to the following partners, friends and financial supporters. Partners with a key icon indicate a partner that is a financial supporter and KEY to our success
American Association of Deaf-Blind (AADB)
The American Association of Deaf-Blind (AADB) is a national consumer organization of, by, and for deaf-blind Americans and their supporters. Their mission is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community.
CHARGE Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome and to promote awareness and research regarding its identification, cause and management. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Most have hearing loss, vision loss, and balance problems which delay their development and communication.
Cornelia de Lange Syndrome Foundation (CdLS)
Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It is a congenital syndrome with many disabilities including vision and hearing loss. The Cornelia de Lange Syndrome Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.
Global Foundation on Peroxisomal Disorders(GFPD)
The Global Foundation for Peroxisomal Disorders helps families of children diagnosed with a Peroxisomal Biogenesis Disorder (in the Zellweger Spectrum of Disorders) by assisting family members and professionals through educational programs, research, and support services.
Helen Keller National Center (HKNC)
The mission of the Helen Keller National Center (HKNC) for Deaf-Blind Youths and Adults is to enable each person who is deaf-blind to live and work in his or her community of choice. The Center operates a residential and training facility in Sands Point, New York. Staff also provide information, training and support in an individual’s home state.
National Association for Parents of Children with Visual Impairments(NAPVI)
The National Association for Parents of Children with Visual Impairments (NAPVI) is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and training to assist parents in helping children reach their potential.
National Center on Deaf-Blindness (NCDB)
The National Center on Deaf-Blindness provides technical assistance and information services to agencies serving children and young adults who are deaf-blind, as well as their families. NCDB has the largest database of information related to deaf-blindness and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years).
National Coalition on Deafblindness
The National Coalition on Deafblindness was formed in 1987 in response to a need to provide feedback to legislators and policy makers regarding the ongoing needs of children who are deafblind and the reauthorization of Individuals with Disabilities Education Act (IDEA). If you have questions, suggestions, and/or would like to become involved, please sign up for the National Coalition on Deafblindness discussion group.
National Deaf-Blind Equipment Distribution Program (NDBEDP) The National Deaf-Blind Equipment Distribution Program (NDBEDP), through the iCanConnect program, ensures that every person with combined hearing and vision loss has access to modern telecommunication tools and the training necessary to use them, granting every individual the opportunity to interact with the world as an involved, contributing member of society.
National Task Force on Deaf-Blind Interpreting (NTFDBI)
The National Task Force on Deaf-Blind Interpreting (NTFDBI) is a collaboration among the Registry of Interpreters for the Deaf (RID), the American Association of the Deaf-Blind (AADB) and the National Consortium of Interpreter Education Centers (NCIEC). The mission of this task force is to establish a standard of effective practice to ensure the quality and availability of interpreters for Deaf-Blind people.
Perkins School for the Blind
Since 1829, Perkins has been a national and international leader and resource providing state-of-the-art education and services to infants, toddlers, children, youth, and young adults who are blind, deafblind or visually impaired, including those with additional disabilities, their families, and the professionals who serve them. Their goal is to maximize the potential of each child to lead a proud, productive, and meaningful life in the mainstream of society in the United States and around the world.
The SKI-HI Institute is a unit of the Research and Evaluation Division of the Center for Persons with Disabilities at Utah State University with outreach programs to Utah citizens, and to families and professionals in nearly all 50 states and Canada. The Institute’s primary purpose is to identify and respond to real needs of young children who are deaf/hard of hearing, blind/visually impaired, deafblind, multi-disabled, or who have any special needs. Their principles are based on recognizing the family as the most vital element of a child’s development and understanding the home as the most natural of learning environments. Ski-Hi has been a leader in developing training for Interveners and for support and training for family members related to Interveners.
Usher Syndrome Coalition
The Usher Syndrome Coalition is an international organization dedicated to helping individuals and families cope with Usher syndrome while working diligently to find treatments and a cure. The Coalition has the largest international registry of individuals with Usher syndrome called the USH Trust; has access to the latest information from the world’s leading researchers on Usher syndrome; and offers the chance to directly participate in the research for treatments and a cure.