In most any city or town around the world, there are only a handful of people who are deaf-blind. This can lead to a feeling of isolation for the individual and everyone in the family. NFADB offers several ways for you to keep connected and stay informed.
Because deaf-blindness is a low incidence disability, families of children who are deaf-blind often have difficulty meeting other families who share similar triumphs and challenges. The National Family Association for Deaf-Blind (NFADB), the National Center on Deaf-Blindness (NCDB), and State Deaf-Blind Projects are working together to offer a unique way for families to connect with one another. Parents of children with deaf-blindness know and understand the needs of families of children with deaf-blindness more than anyone; therefore, Family Engagement Coordinators and Family Leaders will facilitate this collaborative project.
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NFADB is a member of the Helen Keller National Center DB NCOP, a collaborative working group of agencies committed to maximizing resources and enhancing services with and for individuals who are deaf-blind. The DB NCOP looks to strengthen relationships among these agencies and increase opportunities for services and supports available on the local and state level to the deaf-blind community across the country.
If email works best for you, we have the NFADB listserv, which is an email-based service that allows people with a common interest to communicate via group emails. Our members share ideas, questions, successes and news flashes through the NFADB listserv. If you would like to join the NFADB listserv, send a blank email with no subject and no message to: NFADB-SUBSCRIBE-REQUEST@TR.WOU.EDU
The NFADB Facebook community continues to grow. Like any community, our Facebook friends come together to share their successes, challenges, ideas and fun photos of their family. If you’re a Facebook user, check out our page!
Do you have a question that you would like to ask us or another family? Do you want information about resources, therapies, or syndromes? Call NFADB’s national headquarters at 1-800-255-0411 or send us an email at email@example.com. If our administrative assistant is unable to answer your question, she will connect you with someone who can.
Would you like to connect with a parent of a child who is deaf-blind or speak with one of our NFADB board members? Click here
Connect with our entire community via our Facebook page!
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